Draft Health Data Utility (HDU) Framework Supplement Version 1

Civitas Networks for Health (Civitas) has released the Draft HDU Framework Supplement Version 1 for public feedback. This Supplement accompanies the previously released Health Data Utility Framework, which can be found at www.civitasforhealth.org/health-data-utilities.

Please provide feedback on the Supplement focusing on gaps, limitations, or areas for refinement as outlined in the resource. The following questions are optional, please only respond when you have relevant feedback.

This comment period will close on January 31, 2025.

General Value

How does the HDU model enhance the existing health data infrastructure in your state or region?

What aspects of the HDU model need further development?

Governance and Accountability

Are the governance structures outlined in the HDU Framework realistic and adaptable to your state or organization's context?

Please explain any challenges you see in maintaining neutrality and inclusive, cross-sector stakeholder representation in HDU governance models.

Are there accountability mechanisms missing that could enhance trust and transparency in HDU operations?

Policy and Regulatory Environment

Are the proposed policy levers in the HDU Framework sufficient to support HDU development? What additional support is needed for state-specific policy guidance?

Does the HDU Framework adequately reflect the consequences of state-level policies like connectivity mandates and data privacy laws?

Do you feel the HDU Framework adequately articulates the value of the HDU model for our federal policy makers to support adoption?

Funding and Sustainability

Does the HDU model reflect realistic paths to financial sustainability, or are there gaps in the proposed funding strategies that could enhance sustainability?

What risks do you see in relying on the revenue models suggested in the HDU Framework?

Technical Infrastructure

Are the technical infrastructure and services recommendations sufficiently specific to be actionable, or do they require more clarity? Are there technical barriers to achieving HDU functionality that are not in the Framework?

Innovation and Adaptability

Are there innovative models or practices missing from the HDU Framework that could enhance its effectiveness?

How could the HDU model be more forward-looking to better prepare for future challenges in health data governance?

Impact and Outcomes

What potential benefits do you see for population health and quality improvement initiatives through the adoption of the HDU model?

How does the HDU model address gaps in health access, equity, and outcomes for underserved populations?

Stakeholder Engagement, Equity, and Access

Does the HDU Framework address the needs and priorities for integration or coordination with other health data organizations and community partners?

Does the HDU Framework address the needs and priorities of underrepresented stakeholders, such as rural providers, community-based organizations, or small practices?

Does the HDU Framework adequately address challenges that could arise in securing buy-in from stakeholders?

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